Opportunities with The Maddi Foundation


The Maddi Foundation is a non profit rare disease Charity set up by the family of teenager Madeleine Thurgood from Essex who was diagnosed in 2016 with this rare form of motor neurone disease. At present there is no treatment for SPG15 which a serious progressive illness is very life limiting. The Foundation aims to continue to support medical research to help find a cure for the disease and other similar rare diseases

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