Marketing and Social Media

We are looking for help with marketing and social media for our Rare Disease Charity which was set up by our family after my teenage daughter “Maddi” was diagnosed with SPG15, a very rare life limiting genetic disease. The Charities aims are to raise awareness and funds to support medical research to find a cure for such a rare condition. So far we have managed to raise enough funds to work with UK researchers to try to develop a therapy, however more funds are needed to keep this valuable research going. We have been a registered charitable organisation since 2017 and have been involved with media to help raise awareness for The Maddi Foundation globally. Involvement in helping to build and promote campaigns through social media marketing.



Computer and social media skills, Marketing. Being creative is a bonus. Having your own computer 


  • Data Protection policy
  • Equal opportunities policy
  • Expenses reimbursed
    to be discussed and agreed before hand
  • Health and Safety Policy
  • Ongoing support
  • Suitable for under 18s
  • Volunteer induction
  • Volunteer policy
  • Volunteers covered by insurance

When can I volunteer?

Start Date: 30/03/2019

End Date: 30/04/2020

Mon Tue Wed Thu Fri Sat Sun
Morning No No No No No No No
Afternoon No No No No No No No
Evening No No No No No No No

Availability Details

Generally, this can be quite flexible, hours and days to suit the candidate.


This opportunity has no specific location.

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