We are looking for help with Fundraising Management for our Rare Disease Charity which was set up by our family after my teenage daughter “Maddi” was diagnosed with SPG15, a very rare life limiting genetic disease. The Charities aims are to raise awareness and funds to support medical research to find a cure for such a rare condition. So far we have managed to raise enough funds to work with UK researchers to try to develop a therapy, however more funds are needed to keep this valuable research going. We have been a registered charitable organisation since 2017 and have been involved with media to help raise awareness for The Maddi Foundation globally. Involvement in helping to organise fundraisers which would generally be in Essex and London, being able to communicate with other businesses and help to organise events.
skills to help with organising events and talking to local businesses to
encourage support of a our charity.
- Data Protection policy
- Equal opportunities policy
- Expenses reimbursed
- Health and Safety Policy
- Ongoing support
- Suitable for under 18s
- Training provided
Discussions about ideas are applicable
- Volunteer induction
- Volunteer policy
- Volunteers covered by insurance
Public Liability Insurance attending events
When can I volunteer?
Start Date: 30/04/2019
End Date: 30/04/2020
Generally, this can be quite flexible, hours and days to suit the candidate.
This opportunity has no specific location.
More Opportunities from The Maddi Foundation
Essex Wildlife Trust - Brookes Nature Reserve at Sisted near Braintree
NELFT Brighter Futures Healthy Families Service (0-19) teams Thurrock